Neurofibromatoses
Neurofibromatoses
Feb 24, 2022
hopkinsmedicine.org
Neurofibromatosis Type 2 (NF2)
Neurofibromatosis Type 2 (NF2)
Nov 30, 2022
hopkinsmedicine.org
Neurofibromatosis Type 1 (NF1)
Neurofibromatosis Type 1 (NF1)
Apr 9, 2024
hopkinsmedicine.org
“ Hi! My name is Amy. I live with a condition called Neurofibromatosis Type 2, this causes tumors to grow on the nervous system. I found out about it 22 years ago. 2 brain tumors and many others in my brain and body (both treated and untreated), leave me partially deaf, unsteady, tired, slow and I speak pretty quietly (to be brief!). I had a large tumor removed from my spine when I was 10. This left my left arm completely paralyzed at the shoulder. At 15 and again at 16 I had the tumors in my ea
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“ Hi! My name is Amy. I live with a condition called Neurofibromatosi…
132 viewsJul 3, 2023
FacebookYoocan
Neurofibromatosis — a rare disease that doesn’t get enough attention. It’s a genetic condition that causes tumors to grow along nerves in the body. Sometimes they stay small and harmless. Other times, they affect vision, movement, or even the bones and skin. For many people, including @oliverbromley, living with neurofibromatosis means navigating uncertainty — and incredible strength. There’s no single cure yet, but there are treatments that can manage symptoms, slow tumor growth, and improve qu
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Neurofibromatosis — a rare disease that doesn’t get enough attention. …
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