A newly approved high-dose Spinraza regimen may offer added SMA treatment benefits, with similar safety findings to the ...
Guest writer Amal Khdour shares the story of her son, Hussein, who was born with SMA type 1. He is doing well after receiving ...
In order to provide effective support for others, columnist Kevin Schaefer recognizes the importance of addressing his own ...
Columinst Helen Baldwin remembers her infant son, Jeffrey, and the difficult months he went through following his diagnosis of SMA type 1.
SMA is more common in wealthier countries, likely reflecting better diagnostic tools and treatment access, according to a ...
When forming a new friendship, columnist Connie Chandler hopes others see her first. But don't ignore the wheelchair entirely ...
A European Medicines Agency panel recommended that the one-time gene therapy Itvisma be approved to treat SMA patients ages 2 ...
After finding himself no longer able to work because of SMA, guest columnist Eric Ovelgone has rediscovered the joy of ...
Connie Chandler is the director of family engagement at the nonprofit organization We Carry Kevan. She grew up in the foothills of North Carolina but now owns a home and lives in Fort Wayne, Indiana.
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